Pediatric Brain Tumor Resources

This list is not at all inclusive, and is not meant to be. These resources are a starting point to help you in your quest for additional information about Pediatric Brain Tumors (PBT) and the care for children with them.

Clinical Trials and Treatments

Pediatric Brain Tumor Consortium

     Children's Hospital & Regional Medical Center

Seattle, WA

     Children's Hospital of Pittsburgh

Pittsburgh, PA

     Children's Memorial Hospital

Chicago, IL

     Children's National Medical Center

Washington, D. C.

     Dana Farber Cancer Institute

Boston, MA

     National Cancer Institute Bethesda, MD

     St. Jude Children's Research Hospital

Memphis, TN

     Texas Children's Cancer Center

Houston, TX

     The Brain Tumor Center at Duke

Durham, NC

     The Children's Hospital of Philadelphia

Philadelphia, PA

     University of California at San Francisco

San Francisco, CA

The Children's Oncology Group

Virtual Trials (Musella Foundation)

 

 

Brain Tumor Statistics

 

Central Brain Tumor Registry

 

 

General Information/Resources for PBT

 

American Brain Tumor Association

Association of Cancer Online Resources - Pediatric Oncology

Brain Tumor Action Network

Brain Tumor Foundation for Children

Brain Tumor Foundation of Canada

Candlelighters, Childhood Cancer Foundation

Childhood Brain Tumor Foundation

Children's Brain Tumor Foundation

Children's Cancer Association

Hope Street Kids

National Brain Tumor Foundation

National Cancer Institute

     Cancer Information

     Cancer Trials

     Cancer Information Service

     Pediatric Oncology Branch

National Coalition for Cancer Survivorship

National Institutes of Health Medline Plus:  Brain Cancer

North American Brain Tumor Coalition

Pediatric Brain Tumor Consortium Foundation

Pediatric Brain Tumor Foundation of the US

The Brain Tumor Society

The Healing Exchange (T.H.E. BRAIN TRUST)

The National Children's Cancer Society

US National Library of Medicine

 

 

On-line Services

 

Caringbridge (free service connecting families and friends)

Yahoo PBT Support Group (support group for parents)

 

 

Additional Resources

 

Children's Hospice International

Dreams Do Come True

Give Kids The World

Locks of Love

Make A Wish Foundation

Ronald McDonald House Charities

Squirrel Tales

Starlight Children's Foundation

Walt Disney World  Disney HAND

Wigs for Kids

 

Bereaved Parents of the USA

The Compassionate Friends

 

 

Volunteer Pilots

 

Corporate Angel Network

Lifeline Pilots

The Air Care Alliance

 

 

Carcinogens, Toxins, and Environmental Concerns

 

Center for Children's Health and the Environment

Chem-Tox (effects of chemicals and pesticides on children's health)

Children's Health Environmental Coalition

Computer Take Back Campaign

Environmental Working Group

     Mother's milk contains high level of toxic fire retardants

     Cancer-causing pollutants in salmon

Preventing Harm (A Resource and Action Center on Children and The Environment)

Silicon Valley Toxics Coalition

 

 Books (to help the soul heal)

September 2008

Feel free to e-mail parents:   olivia@wildmoose.com